From the day my daughter Piper was born, she had problems pooping. She also had a hard time gaining weight and was diagnosed with reflux. She was given supplemental nutrition and treated for the reflux, but she remained chronically constipated. When she did have a bowel movement, it was huge (like softball sized), it would hurt her terribly and she would bleed.
Elizabeth is 15 years old. She spends 1 week out of every month at C.S. Mott Children’s Hospital receiving IVIG treatments for autoimmune encephalitis. But Elizabeth makes the most out of her time at Mott. Alongside our music therapy team, Elizabeth has learned to play the ukelele and piano.
Elizabeth is one of the many reasons we come to work every day.
Everyone from our doctors and nurses to our scientists and social workers are committed to extraordinary care.
From all of us at C.S. Mott Children’s Hospital,
may you have a healthy and joyful 2015.
You can count on us to care for your family, today, tomorrow and always.
C.S. Mott Children’s Hospital
The Pediatric NeuroRehabilitation program at Milestones is celebrating 25 years of service. Mary Covill shares her daughter’s story
For our daughter Julia, prom night 2012 wasn’t just a rite of passage – it was a milestone we weren’t sure would ever be possible. Except for the walker at her side, you wouldn’t know that the smiling teenager in the purple, strapless dress, arms wrapped around friends while posing for pictures, couldn’t walk or remember everyday words just months earlier.
Some seemingly ordinary moments are forever seared into a parent’s memory. For us, that’s the afternoon of Feb.11, 2012 as Julia left for a friend’s house to get ready for a winter dance. I remember warning her it was supposed to snow. I remember telling her to drive slowly.
The Pediatric NeuroRehabilitation program at Milestones is celebrating 25 years of service. Mary Foy shares how her son Daniel has faced numerous challenges in his life, but thanks to his time at Milestones, he’s preparing to attend college next year.
Many parents talk about the whirlwind of emotion surrounding the day of their first baby’s birth and our story was no exception. Within hours of experiencing the joy and excitement of finally meeting our firstborn, blue-eyed baby boy Dan, I learned he had a serious heart condition that could kill him.
Dan had what’s called hypoplastic left heart syndrome, a rare congenital heart defect that occurs when parts of the left side of the heart don’t completely develop. At four days old, instead of coming home, he was undergoing his first open-heart surgery at University of Michigan’s C.S. Mott Children’s Hospital.
Our grandson Gabe was just five years old when two life-altering events suddenly crashed his kindergartner world. First was the diagnosis no family can ever be prepared for when we were told Gabe had acute lymphocytic leukemia (A.L.L.) Then, shortly after starting treatment, complications led to another unimaginable outcome- he became paralyzed.
When I first learned that I was pregnant with identical twins, I was six weeks into the pregnancy. My husband and I were informed shortly afterwards about the potential risks of developing twin-to-twin transfusion syndrome (TTTS). Our doctor told us approximately 10 to 15 percent of twins who share the same placenta develop TTTS. The risk was always there in the back of our minds, but we didn’t dwell on what might happen.
We were referred to the University of Michigan Maternal Fetal Medicine team for high-risk pregnancies. I just figured we were going to receive top-notch prenatal care! Then, at my 16-week check up, the doctor saw signs that TTTS may be developing and immediately sent us for a more in-depth ultrasound.