When a child is diagnosed with a serious eye disorder, it can be extremely unsettling to both parent and child. The parent’s first challenge is to learn about the disease, its treatment, and what this means for the child’s eyesight. It’s understandable that parents often feel alone in their struggle and are unsure and anxious about what lies ahead.
A group of physicians at the University of Michigan Kellogg Eye Center want to help parents find the resources they need — whether these are aids for low vision or advice on navigating the school system. Even more important, we realize that parents can benefit greatly from discussing shared experiences with others in a group setting. It gives them the opportunity to learn about how others in the same situation are handling challenges.
A new support group — called the Pediatric Support Group for Parents and Families of Children with Eye Disease and Visual Impairment — is forming to provide education and support for parents. The first in a series, the group will be held on Saturday, June 15, 2013 at 9:30 a.m. – 12:00 noon at the Eye Center in Ann Arbor. The meeting is open to all parents and families of children with eye disease and visual impairment.
Parents are asked to bring questions. In addition to presentations by specialists and pediatric ophthalmologists, the program includes time for group discussion and Q&A sessions. We’ve also asked two parents to speak about their experiences.
The meeting and parking are free but registration is required. Childcare and a continental breakfast/lunch will be provided.
For more information please contact Karen Norman at 734.764.4163.
Brenda L. Bohnsack, M.D., Ph.D., Assistant Professor, Ophthalmology and Visual Sciences, specializes in pediatric ophthalmology and adult strabismus. Her specialty interests include the diagnosis and treatment of infantile/childhood glaucoma and congenital eye diseases. Dr. Bohnsack also sees children with cataracts, strabismus, amblyopia, and lacrimal disorders.
University of Michigan C.S. Mott Children’s Hospital is consistently ranked one of the best hospitals in the country. It was nationally ranked in all ten pediatric specialties in U.S. News Media Group’s “America’s Best Children’s Hospitals,” and among the 10 best children’s hospitals in the nation by Parents Magazine. In December 2011, the hospital opened our new 12-story, state-of-the-art facility offering cutting-edge specialty services for newborns, children and women.