Olivia Rowland is a senior at Chelsea High School and a member of the Teen Advisory Council at C.S. Mott Children’s Hospital.
Even if our doctors just can’t speak on the same level as us, I can’t stress enough how important it is that we ask questions when we are confused. It can be a little scary to ask someone as intimidating as a doctor to change the way they explain something to you, but the benefit that you’ll get in doing so can be crucial.
I’ve also come to learn that doctors can’t do everything on their own. My doctor can’t read my mind, and if there is something going on that he didn’t already ask me about, I need to speak up. A large part of any healing process comes down to us working together with our doctors, sharing information with them and making sure that we walk away from an appointment understanding exactly what is happening to our bodies, and what the next step is.
It’s also helpful to understand that being in the doctor’s office can be stressful, so sometimes it helps to make a list of questions ahead of time so you don’t have to remember everything on the spot. Here are some questions you can use:
When you are given your diagnosis…
Can you draw me a picture to help me understand?
Will there be any long-term effects of this problem?
March 21 was Down Syndrome Awareness Day. In celebration of all our “Little Victors” with Trisomy 21 and their families, we interviewed Emily Campbell, mom to the very charming Teddy, and an active volunteer in our Patient and Family Centered Care Advisory Program.
How did you come to be involved in our patient and family centered care programs?
My son Teddy was prenatally diagnosed with Down Syndrome at the Fetal Diagnostic Center at University of Michigan Von Voigtlander Women’s Hospital. At the time, I felt like I was really supported – people were really helpful and I was well taken care of. I felt like at the Fetal Diagnostic Center I was given the space to make a decision on my own about what decision was right for my family. But as I got more involved in the Down Syndrome community, I found that not everyone was getting that level of support when they are given this diagnosis. So I became interested in helping shape how this diagnosis is given so it’s not just presented as a list of potential problems. I wanted to help shape that conversation a little bit more.
What are some ways you’ve been able to do that?
Mostly I tell my story – Teddy’s story, our story of what happened for us. For the past 3 years I have been speaking to the medical students entering their 2nd year of med school in a session called “Breaking bad news.” Each semester I also talk to an undergrad psychology class of students preparing to go into social work or other health careers. I’m also frequently asked to speak with other social work classes or other groups around campus looking to have a patient / family story told.
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