Ever since he was six weeks old, baby Kaiba often stopped breathing. The part of his windpipe that carries air to his left lung would suddenly collapse, leaving him unable to breathe and requiring emergency assistance every time.
Kaiba had a condition called tracheobronchomalacia. It’s a rare condition – about 1 in 2,200 babies are born with tracheomalacia and most children grow out of it by age 2 or 3, although it is often misdiagnosed as asthma that doesn’t respond to treatment.
Severe cases, like Kaiba’s, are even more rare, and they are very frightening.
It’s a condition that has bothered me for years. Children die from tracheobronchomalacia, but I hoped that help could be found for these children.
Kaiba’s parents, April and Bryan, were left watching helplessly each time he stopped breathing, praying that something would change and doctor’s predictions that he would never leave the hospital again weren’t true.
They lived in Ohio but they were willing to go anywhere if it meant they could get help for Kaiba. Fortunately, they didn’t have to go far.