Social Security’s Supplemental Security Income (SSI) program pays benefits to children with a qualifying disability and whose family meets the financial requirements. The benefits are helpful for many families struggling with the challenges of caring for a child with a disability or chronic illness, but understanding how the program works is not always easy.
On the Friday our son Dominic turned 9 weeks old, he started throwing up immediately after eating. This continued on and off through out the weekend, so we took him to the pediatrician first-thing Monday. During that appointment, the doctor noticed that his head circumference seemed to be not following the normal growth curve. He sent us to a nearby hospital right away.
There they did an ultrasound and MRI, which revealed that Dominic had a brain tumor. On July 23, 2014, he underwent a seven hour tumor resection. The tumor was quite large, about 40 percent of his brain space. One week later, we learned the tumor was a rare, cancerous tumor, called a Choroid Plexus Carcinoma. We knew the road ahead of us would be a long one. Unfortunately, we just didn’t feel like the hospital we were at was a good fit for us, so we transferred Dominic’s care to C.S. Mott Children’s Hospital.
When Anna Dai and Efrain Segarra signed up to take an entry-level computer engineering course at University of Michigan, they expected to learn about game software development.
What they did not expect was to find themselves taking gaming to a whole new level through a massive project at U-M C.S. Mott Children’s Hospital. Thanks to their efforts – along with the generosity of dozens of other individuals and groups – patients at Mott will now find their room equipped with an Xbox 360.
Out of the classroom, into the real world
Efrain Segarra was a freshman when he took Professor David Chesney’s course.
“Dr. Chesney calls it Gaming for the Greater Good,” says Segarra, referring to the course’s focus on developing software that can benefit children with disabilities.
Before we know it, 2016 will be here! That means it’s time to nominate your “Little Victor” to be featured in our 2016 calendars!
When my daughter Adrian had to miss a week of third grade for a surgery related to her cleft lip and palate, she wanted to put together a slide show for her classmates so they knew her story.
“When I was growing in my mom’s belly, my lip did not grow together like yours did. Neither did the roof of my mouth,” it begins.
Her baby picture was included too, which shows the stitches and bandages around her mouth and nose after her first surgery as a baby when doctors fixed her lip so it was easier to eat.
It’s not new, this “news.” It’s actually the same story – hashed and rehashed, depending on which celebrity or politician or spokesperson is given the megaphone.
Who is in the news talking about vaccines may change from day to day, but one thing has not.