From patient to advocate

February 29 is Rare Disease Day

cropped IMG_1244His wife Nancy couldn’t take the snoring anymore, so after a couple of months Dan Nagridge went to ask his doctor if he had sleep apnea.

He ended up at the University of Michigan Health System, with a surprise diagnosis: cancer at the base of his skull. It was chordoma, a slow-growing cancer that’s extremely rare, pushing on the back of Dan’s throat that made him start snoring.

“The cancer starts from tissue that was left when he was forming as an embryo in his mother’s womb,” says Erin McKean, M.D., MBA, a U-M otolaryngologist, or ear, nose and throat doctor, and Dan’s surgeon. “We don’t know why people develop this cancer, so we’re very invested in advancing the research.” Continue reading