My Name is Katie and I’m fighting Ewing’s Sarcoma in my battle to Block Out Cancer

Katie Shaver - Block Out CancerI just started my senior year at Marlette High School, but my teen years have been a pretty different experience than most other girls my age. When I was in eighth grade, I had pain in my hip for a few months. I went to a chiropractor who thought it was arthritis. When the pain did not go away, I had X-rays that showed a grapefruit-sized mass attached to my hip. I was diagnosed with Ewing’s Sarcoma, a cancerous tumor that is most often found in bones or nearby tissue.

I was referred to C.S. Mott Children’s Hospital for care. Because the tumor was in my hip, my first experiences at Mott were with the oncology clinic and Dr. Biermann, an orthopedic surgeon who specializes in orthopedic oncology. With Dr. Biermann, I underwent surgery to remove the tumor and my ilium (the large bone in your pelvis) on November 30th. I also had 13 rounds of chemo stretching from August through April. The chemo was not fun! I lost my hair and felt sick. I missed volleyball season that year.

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Improving the Patient Experience: How can we do this better?

By Erica Southworth, NP

As a nurse practitioner for the past seven years, I have had the privilege of being able to help many families through one of the most difficult times of their lives.

My area of specialization and interest is working with children and families faced with the diagnosis of a solid tumor, such as neuroblastoma or Wilms tumor.

Solid tumors are complex conditions that require a full team of specialists to treat.  Families are referred to us from all over Michigan and sometimes beyond. Often, prior to being sent to us, they may have experienced a long, frustrating and seemingly endless journey towards a diagnosis. As a professional and as a mother, I have always found it frustrating to see families who, having bounced around from appointment to appointment, are exhausted and scared when finally arriving at U-M. Even after their numerous appointments, they still possess little formal information about their child’s condition or disease.

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