When a child is diagnosed with a serious eye disorder, it can be extremely unsettling to both parent and child. The parent’s first challenge is to learn about the disease, its treatment, and what this means for the child’s eyesight. It’s understandable that parents often feel alone in their struggle and are unsure and anxious about what lies ahead.
A group of physicians at the University of Michigan Kellogg Eye Center want to help parents find the resources they need — whether these are aids for low vision or advice on navigating the school system. Even more important, we realize that parents can benefit greatly from discussing shared experiences with others in a group setting. It gives them the opportunity to learn about how others in the same situation are handling challenges.