When you love someone with Lewy Body Dementia

Suggestions for family and friends from people with LBD

Older_man_with_woman_on_beach_LBDLewy Body Dementia (LBD) is a disease that affects a person’s thinking and motor skills. Due to the illness, people with LBD may behave in ways that are different than the past. LBD causes people to absorb information more slowly, have problems with balance, have difficulty handling things, experience hallucinations and sleep more, among other symptoms.

It can be hard for friends and family to understand how someone with LBD feels—and even harder to know what to say or do. Members of the Ann Arbor Support Group for those with LBD have put together some suggestions.

I have Lewy Body Dementia (LBD). Please . . .

Give me some slack. It takes me a little longer to do things because my brain works more slowly, but I’ll get there. Just give me time.  Continue reading

Lewy body dementia

The Alzheimer’s disease and dementia series

Michigan Alzheimer's Disease Center has established support groups for people with Lewy body dementia and their caregivers.

In partnership with a caregiver, Michigan Alzheimer’s Disease Center is offering support groups for people with Lewy body dementia and their caregivers.

Lewy body dementia (LBD) is the second most common form of degenerative dementia in the United States. LBD affects an estimated 1.4 million Americans. The symptoms of LBD are often mistaken for more well-known diseases like Alzheimer’s and Parkinson’s disease. They are so similar that only 30-50% of all LBD cases are accurately diagnosed.

What makes LBD different? 

The presence of Lewy bodies—abnormal deposits of the protein alpha-synuclein that build up in the brain—distinguish LBD from other dementias. The Lewy bodies are tiny spherical structures that develop inside nerve cells. Their presence leads to the degeneration of brain tissue.  Continue reading