Rx for childhood sarcoma survivors: A lifetime of surveillance and screening

sarcoma survivorship

Laurence Baker, D.O. and Monika Leja, M.D. have established the first Sarcoma Survivorship Clinic. It includes pediatric and adult sarcoma experts across all medical disciplines.

A generation ago, despite aggressive surgery that included radical amputation, newly diagnosed patients with a bone or soft tissue sarcoma often died of cancer. Today the vast majority of these patients are cured. But for many teens and young adults who were successfully treated for sarcoma, the future holds uncertainty about achieving or maintaining good health.

Survivors face unique problems and psychosocial challenges related to sarcoma surgery, radiation and chemotherapy that have a major impact on long-term health. Many have a reduced life expectancy.

Heart disease in a 30-year-old is rare; heart disease in a 30-year-old sarcoma survivor is not. In fact, heart disease is the main issue facing sarcoma survivors – nearly a third will develop a cardiac issue after treatment.

Other potential conditions include:

  • Type 2 diabetes
  • High blood pressure
  • Lipid disorders
  • Kidney failure
  • Anxiety, depression and other mental health problems
  • Sarcoma recurrence
  • Secondary cancer(s)

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