For many patients and their families, the care they receive from C.S. Mott Children’s Hospital and Von Voigtlander Women’s Hospital nurses is transformative. We hear time and time again how families’ experiences – with the individuals who are on the front lines right there alongside them, advocating for each child’s unique situation – have touched their lives.
What you may not know, however, is that these experiences are often equally as transformative for our nurses. Nurses feel the highs of a patient’s triumph and the devastating lows of hearing news you had hoped you would never hear.
If you’ve ever had a loved one in the hospital, the thought of sending flowers may have crossed your mind.
One group of volunteers at C.S. Mott Children’s Hospital and Von Voigtlander Women’s Hospital understands the power of flowers particularly well, and takes the sentiment to a whole new dimension with their flower therapy program.
Every other week, from September through May, a group of dedicated volunteers known fondly as the Flower Ladies fills the hospital’s Family Center with the delightful sights and smells of fresh flowers.
What the Flower Ladies know, that many families are surprised to learn, is that flowers can be a lot more than decoration for a hospital room shelf.
These injectors, like other epinephrine injectors, are used to treat life-threatening allergic reactions (anaphylaxis).
Families of patients who currently use the Auvi-Q as their auto-injector should contact their physician immediately to arrange for a prescription to one of two alternate epinephrine auto-injectors (EpiPen or Adrenaclick). University of Michigan Food Allergy Clinic patients can contact us directly at 888-229-2409.
Social Security’s Supplemental Security Income (SSI) program pays benefits to children with a qualifying disability and whose family meets the financial requirements. The benefits are helpful for many families struggling with the challenges of caring for a child with a disability or chronic illness, but understanding how the program works is not always easy.
On the Friday our son Dominic turned 9 weeks old, he started throwing up immediately after eating. This continued on and off through out the weekend, so we took him to the pediatrician first-thing Monday. During that appointment, the doctor noticed that his head circumference seemed to be not following the normal growth curve. He sent us to a nearby hospital right away.
There they did an ultrasound and MRI, which revealed that Dominic had a brain tumor. On July 23, 2014, he underwent a seven hour tumor resection. The tumor was quite large, about 40 percent of his brain space. One week later, we learned the tumor was a rare, cancerous tumor, called a Choroid Plexus Carcinoma. We knew the road ahead of us would be a long one. Unfortunately, we just didn’t feel like the hospital we were at was a good fit for us, so we transferred Dominic’s care to C.S. Mott Children’s Hospital.
When Anna Dai and Efrain Segarra signed up to take an entry-level computer engineering course at University of Michigan, they expected to learn about game software development.
What they did not expect was to find themselves taking gaming to a whole new level through a massive project at U-M C.S. Mott Children’s Hospital. Thanks to their efforts – along with the generosity of dozens of other individuals and groups – patients at Mott will now find their room equipped with an Xbox 360.
Out of the classroom, into the real world
Efrain Segarra was a freshman when he took Professor David Chesney’s course.
“Dr. Chesney calls it Gaming for the Greater Good,” says Segarra, referring to the course’s focus on developing software that can benefit children with disabilities.
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