When recovering cancer patients want improved everyday function, reduction in fatigue levels or help controlling the side effects of lymphedema, a clinical exercise physiologist can help. mCancerPartner recently discussed the role of exercise physiologists in patient recovery with Chrissy Parker, a certified exercise physiologist on staff at the University of Michigan Health System.
Resources from Thoracic Surgery at U-M helped Mike McFarlane and his wife get back to the things they enjoy–like riding his motorcycle.
In October 2010, I was diagnosed with esophageal cancer by doctors here in Saginaw. They referred me to the University of Michigan for further evaluation and treatment. The treatment plan involved a combination of radiation and chemotherapy, which I received in Saginaw, followed by surgery at the University of Michigan.
I tolerated the chemo and radiation well. I went in for treatment in the morning and then to work. I work in the tent rental business and the winter is our slow time, so it was mostly answering phones and office work, but I was happy to be able to continue working through my treatment. On February 17, 2011, Dr. Reddy removed most of my esophagus. During the procedure, called a transhiatal esophagectomy, he pulled my stomach up and reattached it to the remaining top of my esophagus.
Although the surgery sounds awful, I feel I personally handled it well. I was in the hospital for a total of seven days and was able to walk the day following surgery. I had a feeding tube, but only used it during my stay in the hospital. Dr. Reddy’s team and everyone at the hospital prepared me and my wife for the surgery and what to expect afterwards. This made my recovery easier to handle.
The first week at home was pretty rough, but my wife really helped me that week with things that were too hard to do myself. I adjusted to the new way of eating. I had to eat smaller portions and really chew up my food well. I only had a few eating restrictions including bread, carbonated beverages, etc. Only by trying different foods after the surgery did I learn what was tolerable for me. And now, as long as I can swallow it I can eat it.
In May of that year, I started to have trouble swallowing. We went to see Dr. Reddy who told me I had a stricture (a tightening) from where the surgery was healing. He put a tube down my throat to stretch the stricture and break up the scar tissue. He taught me and my wife how to do that at home. Putting a tube down my throat isn’t my favorite thing to do, but it helps keep the new passageway to my stomach open, so I do it. At first, I did it every day for 30 days, then I tapered off. Now I do it about once every five weeks.
Because we live in Saginaw, I wasn’t able to participate in some of the patient support groups at the University of Michigan, but I did connect with a videoconference support group once. It was interesting to hear other people who were dealing with a similar situation. It was helpful to hear other people talking about the issues they faced and how they dealt with them. It gave me comfort to know I was not alone.
Three years after my surgery, I’m healthy and grateful to Dr. Reddy and his team for their expertise. When he told me back then that I’d be fine and things would get easier with time, it was hard to believe — but he was right, things really do get better! My wife and I enjoy riding my motorcycle, working in the yard, and spending time with our children and grandchildren. As previously stated, I eat much smaller meals now. Also, I try not to eat or drink after 8 p.m. I’m much healthier now.
For anyone facing a similar situation, my advice is to go into it pumped up with a good attitude and follow the doctor’s orders. It’s worked for me!
Mike MacFarlane lives in Saginaw, Mich. with his wife of 37 years. They have three children and four grandchildren. They enjoy riding Mike’s Harley-Davidson on trips around Michigan. His experience as an esophagectomy patient relied heavily on the support services and insight available from U-M Thoracic Surgery.
Thoracic surgery at the University of Michigan is a nationally recognized leader in the surgical treatment of patients with diseases of the esophagus, lung, mediastinum, trachea and diaphragm. We are dedicated to providing patients the type of supportive care they need to regain their lifestyle after a serious procedure, including esophagectomy.
When Peter Rich was diagnosed with stage 4 prostate cancer at age 59, he asked a tough question for one very distinct reason.
“I said, ‘Doc, am I going to die from this?’ When she said yes, I asked how long. I want to talk in terms of that so I can prove you wrong,” Rich says.
He has. Despite the 30-month average survival time for metastatic prostate cancer, he’s now been living with cancer for six years.
Rich has been through a number of different treatments – radiation, chemotherapy, abiraterone, PARP inhibitor, and numerous clinical trials, all under the care of Kathleen Cooney, M.D., his oncologist at the University of Michigan Comprehensive Cancer Center. He currently takes Xtandi (enzalutamide), which is designed to interfere with the hormone androgen. It’s four pills a day, and it makes him tired so he takes two naps each day.
As our understanding of cancer and its treatment advances, scientists have discovered the critical role that our individual genetic make-up plays. People are not the same (except for biological twins), and no two cancers are the same either – so why treat them as such? These genetic differences can help explain why one person responds to a treatment and another person with the same type and stage of cancer does not respond at all or even has progression of their disease. Personalized cancer treatment is a promising strategy in the fight against cancer.
One type of personalized medicine that is getting a lot of attention lately is called targeted therapy. This type of therapy “targets” certain receptors and proteins on the cancer cell. It is a hot area for new drug development: so far this year seven of the Continue reading →
For patients diagnosed with cancers of the prostate, bladder, penis or testes, surgery, radiation therapy and chemotherapy can be lifesavers. But while these therapies are stepping stones to survival, when it comes to sexual intimacy after urologic cancer, they can leave patients and their partners with lasting physical and emotional obstacles, and lots of questions they may be reluctant to ask.
Fortunately, the U-M Comprehensive Cancer Center is one place where patients can look for answers and support as they rebound and reconnect after treatment. mCancerPartner recently discussed intimacy after cancer with Daniela Wittmann, Ph.D., L.M.S.W., a clinical assistant professor in the U-M Department of Urology and one of the leaders of the Cancer Center’s Jan and Dave Brandon Prostate Cancer Survivorship Program. Although Dr. Wittmann works primarily with prostate cancer patients, her advice applies to patients facing other urologic cancers, beginning with these four steps:
Chemotherapy is considered a hazardous waste, so don’t throw any hazardous wastes into the garbage.
Special steps need to be taken to protect you and your caregivers from accidentally coming into contact with chemotherapy medicine when receiving chemotherapy infusions at home. You should be careful that others do not accidentally touch the drugs or your body fluids (urine, stool, saliva and vomit). When these drugs leave your body as waste, they can harm or irritate skin – even other people’s skin. These steps should be followed during your infusion and for two days after stopping your chemotherapy.
If you are a patient at the University of Michigan, the Skills Lab nurses will teach you the skills you need to receive chemotherapy at home. You will be set up with an appointment with the nurse educator before you are connected to your first home chemotherapy infusion. The nurse will also answer any questions you have regarding your treatment at home.
Frequently asked questions
Is it safe for family member to have contact with me during my chemotherapy infusions at home?
Yes. Eating together, enjoying favorite activities, hugging and kissing are all safe. Continue reading →