Elizabeth is 15 years old. She spends 1 week out of every month at C.S. Mott Children’s Hospital receiving IVIG treatments for autoimmune encephalitis. But Elizabeth makes the most out of her time at Mott. Alongside our music therapy team, Elizabeth has learned to play the ukelele and piano.
Elizabeth is one of the many reasons we come to work every day.
Everyone from our doctors and nurses to our scientists and social workers are committed to extraordinary care.
From all of us at C.S. Mott Children’s Hospital,
may you have a healthy and joyful 2015.
You can count on us to care for your family, today, tomorrow and always.
Julia Covill (2nd from left) and friends posing for prom pictures in 2012
The Pediatric NeuroRehabilitation program at Milestones is celebrating 25 years of service. Mary Covill shares her daughter’s story
For our daughter Julia, prom night 2012 wasn’t just a rite of passage – it was a milestone we weren’t sure would ever be possible. Except for the walker at her side, you wouldn’t know that the smiling teenager in the purple, strapless dress, arms wrapped around friends while posing for pictures, couldn’t walk or remember everyday words just months earlier.
Some seemingly ordinary moments are forever seared into a parent’s memory. For us, that’s the afternoon of Feb.11, 2012 as Julia left for a friend’s house to get ready for a winter dance. I remember warning her it was supposed to snow. I remember telling her to drive slowly.
A long way from being placed in hospice at age 2. Dan, 19, is planning to attend college soon.
The Pediatric NeuroRehabilitation program at Milestones is celebrating 25 years of service. Mary Foy shares how her son Daniel has faced numerous challenges in his life, but thanks to his time at Milestones, he’s preparing to attend college next year.
Many parents talk about the whirlwind of emotion surrounding the day of their first baby’s birth and our story was no exception. Within hours of experiencing the joy and excitement of finally meeting our firstborn, blue-eyed baby boy Dan, I learned he had a serious heart condition that could kill him.
Dan had what’s called hypoplastic left heart syndrome, a rare congenital heart defect that occurs when parts of the left side of the heart don’t completely develop. At four days old, instead of coming home, he was undergoing his first open-heart surgery at University of Michigan’s C.S. Mott Children’s Hospital.
We rely on donations to make the Mott Toy Store a success each year for families of hospitalized children.
Every year, we are awestruck by the generosity of organizations, families and individuals who want to help the kids at Mott during the holiday season. It’s a beautiful reminder of the kindness of the human spirit.
Your donations help us bring cheer to our Little Victors year round, but this time of year, in particular, they help us make our annual “Mott Toy Shop” possible. Many of the parents of our Little Victors are reluctant to leave their child’s bedside for five minutes, let alone enough time to brave crowded stores for holiday shopping. And all too many are also feeling the weight of financial challenges. The Mott Toy Shop helps these parents still give their child a holiday experience even while spending their holiday in the hospital.
If you’re interested in making a holiday donation to Mott, here are some things you should know: Continue reading →
Managing food allergy in schools remains a challenge. There is little evidence to guide school officials in managing and balancing both the needs of the 8% of children with food allergy, as well as the children without food allergy. Recent data from the March 2014 C.S. Mott Children’s Hospital National Poll on Children’s Health demonstrated that there is no clear parental consensus on how to manage such issues. Striking a balance that allows all parties to feel their needs are validated is a tremendously difficult task, but mutually acceptable solutions are accomplishable.
In this light, recent comments made by elected a Clawson, Michigan school board member at their November Board of Education Meeting are disheartening and inappropriate. The board member suggested that students with food allergies “should be shot” as a means of accommodating their health concerns. Obviously, she was joking, but the comments were insensitive. Food allergy is not a laughing matter, and these children should not serve as a target of derision. Here are a few reasons why food allergies must be taken seriously within the education community.
The Pediatric NeuroRehabilitation program at Milestones is celebrating 25 years of service. Bill and Debbie Belcher share how their grandson Gabe’s life changed after a leukemia diagnosis.
Our grandson Gabe was just five years old when two life-altering events suddenly crashed his kindergartner world. First was the diagnosis no family can ever be prepared for when we were told Gabe had acute lymphocytic leukemia (A.L.L.) Then, shortly after starting treatment, complications led to another unimaginable outcome- he became paralyzed.
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