Gamers give back to Mott

Gamers Outreach team delivering Xbox 360 consoles they are helping C.S. Mott Children's Hospital install in patient rooms.Being in the hospital is a little more fun for kids at C.S. Mott Children’s Hospital, thanks in part to the generous support of Gamers Outreach Foundation and the Mott Family Network. And, it’s about to get even more fun!

Gamers Outreach was founded by 25-year-old Zach Wigal. When Zach was in high school, he enjoyed a wide variety of activities, but playing video games was a favorite. So much so that he decided to organize a video game tournament in his hometown of Saline, Mich. Part of his goal was to have fun, but the other part was to help dispel the negative connotation that often accompanies gaming. More than 300 people registered for that first tournament and the event raised $4,000 for the Autism Society of America. It was through that event that Gamers Outreach Foundation was born.

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Making difficult medical decisions

Pediatrics Ethics Committee available to help

pediatric ethics committeeWhen someone is ill, they typically seek medical care. Usually simple enough, but there are those complex situations where medical care also involves making decisions about ethics.

I first became interested in medical ethics during my pre-med undergraduate studies. I took an ethics course and thought it was the most important part of being a doctor. That drove me to pursue additional education in medical ethics as well as my training as a pediatric plastic surgeon.

The Pediatrics Ethics Committee at C.S. Mott Children’s Hospital is comprised of representatives from different areas of the hospital as well as members of the community. Continue reading

My name is Kristan, and I help reduce anxiety for kids fighting to Block Out Cancer.

Kristan Freitag, Child Life SpecialistI always knew I wanted to work with children, I just wasn’t sure what avenue that would take. During one of my school breaks my sophomore year at Central Michigan University, I did what is called an alternative break. I joined a group volunteering at St. Jude Children’s Hospital. I fell in love with the Child Life profession while I was there.

I love my job. I first interned at Mott about five years ago and then joined the team as a Child Life Specialist. Today, I work with pediatric patients in our radiation oncology unit. Before I started here, there was not a Child Life Specialist on this unit and about 40 percent of the patients had to be sedated for their radiation treatment. Because most of the kids receive radiation multiple days in a row, sedating them so frequently was a concern. We’ve been able to reduce that to about 2 percent.

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Trail’s Edge Camp celebrates 25 years of camping fun for ventilator-dependent children

Twenty-five years ago, I was working as a respiratory therapist at C.S. Mott Children’s Hospital working with ventilator-dependent children. A mother of a ventilator-dependent child expressed how emotionally trying and physically exhausting her child’s care was at home. She simply wished for one week a year where she wasn’t responsible for the 24/7 care of her child whose life depended on the ventilator. So, we made that wish a reality and created Trail’s Edge Camp.

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Friday is cupcake therapy day

Cupcake therapy at Mott Children's HospitalSpending time in the hospital isn’t a piece of cake, but on Fridays at C.S. Mott Children’s Hospital it’s cupcake time. Every Friday from 2 to 3:30, we host Cupcake Therapy in the Family Center. Cupcake Therapy is a great informal time for family members and patients to relax and enjoy decorating cupcakes.

Each week we have a theme based on the season or what’s happening at the University or in the Health System. We’ve done St. Patrick’s Day, spring flowers, March Madness, maize and blue and even made Despicable Me-themed Minion cupcakes. Chef Steve Shifano and his staff bake the cupcakes and the Family Center provides the frosting and all the decorations. Ann Hendrick, Family Center Coordinator, and I roll out the cupcake cart each Friday. We create a few sample cupcakes each week and those who come down to decorate use our theme and then express their own creativity.

We started calling it Cupcake Therapy after one of our Friday regulars came down and said he was there for Cupcake Therapy. Continue reading

Sharing hope where it’s needed most: A “heart mom” gives back

colleen schomakerLike many parents, I didn’t spend a lot of time thinking about congenital heart defects.  That changed a little over 13 years ago.  It was then, at my 20 week ultrasound, that it was discovered my unborn baby would be born with a severe heart defect called Hypoplastic Left Heart Syndrome, which essentially meant only half of his heart would be the normal size needed to function.

We learned a lot that day.  We were told that heart defects were the most common birth defect, that I didn’t do anything to cause it, and it was likely a ”fluke.” We learned that his options were limited, his mortality rate was significantly increased and that we could have a lifetime of unknowns and medical care ahead of us. We were told his best chance at survival would be to have one of three open heart surgeries just days after birth.

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