What does this mean exactly? Aside from this bringing yet another year of training (this will be 27th grade for me!), I will spend a year learning how to take care of children diagnosed with brain tumors, working with incredible pediatric neuro-oncology clinicians, Dr. Patricia Robertson and Marcia Leonard, APRN.
In addition to my clinical work, I will also continue working in the Castro/Lowenstein Lab that focuses on learning more about malignant brain tumors. Drs. Lowenstein and Castro have established tremendous success in developing gene therapies to treat brain tumors, one of which is now the basis of a Phase I trial in adult patients here at the University of Michigan. Continue reading →
In late August, Children’s Mercy Hospital in Kansas City, Mo., began seeing an unusual number of children experiencing respiratory problems. The patients tested positive on a respiratory panel administered by the hospital, but that panel could not identify the specific virus. Staff sent the samples to the Center for Disease Control and Prevention (CDC) for further analysis. The CDC determined that the patients were suffering from Enterovirus D68 (EV-D68).
There are about 100 different types of Enterovirus. From June to October every year, some type of Enterovirus usually circulates in the United States. If you’ve ever had a summer cold, it was probably caused by an Enterovirus. EV-D68 specifically is something we don’t typically see in the U.S., but it has been around since the 1960s.
While we’ve seen an increase in patient volume at the C.S. Mott Children’s Hospital emergency department and in our Intensive Care Unit, we cannot conclusively say that these patients have EV-D68. The only way to know is to have lab samples examined by the CDC, which we are working on now.
Through verbal conversations, written texts, and/or visual representations, these children with cancer shared with me their personal and intimate experiences.
It has been an honor to listen to these children, to give them a chance to have their voice be heard. The written and drawn narratives in the book, some of which are excerpted in the below slideshow, illuminate aspects of childhood cancer that too often remain hidden.
I always knew I wanted to work with children, I just wasn’t sure what avenue that would take. During one of my school breaks my sophomore year at Central Michigan University, I did what is called an alternative break. I joined a group volunteering at St. Jude Children’s Hospital. I fell in love with the Child Life profession while I was there.
I love my job. I first interned at Mott about five years ago and then joined the team as a Child Life Specialist. Today, I work with pediatric patients in our radiation oncology unit. Before I started here, there was not a Child Life Specialist on this unit and about 40 percent of the patients had to be sedated for their radiation treatment. Because most of the kids receive radiation multiple days in a row, sedating them so frequently was a concern. We’ve been able to reduce that to about 2 percent.
Have you ever heard of DiGeorge syndrome? How about Velocardiofacial syndrome? 22q deletion syndrome? Maybe your answer is yes, but it would not be surprising for the answer to these questions to be no.
That is part of the problem.
One in every 2,000 to 4,000 children born have 22q11.2 deletion syndrome, making it almost as common as Down syndrome. Yet it’s an unfamiliar term to most people.
As the lazy, hazy days of summer wind down, many parents (and some children) are ready to get back to the routine of the school year. That routine is one of the key ingredients of a successful back-to-school experience. Try out these back to school tips to make your adjustment back into the school year routine a smoother one.
After a summer of what was most likely a fluctuating bed time, reintroducing the school-night bedtime can be a challenge. It’s easiest if you gradually work back into it instead of waiting until the night before the first day. About a week before school starts, gradually start moving bedtime closer to what it will be during the school year. Move it up 20 or 30 minutes every evening until you’re back on track. Also start re-establishing a bedtime routine — bath/shower, brushing teeth, reading, etc. Whatever your school year routine is, get started with that now.
What’s your typical morning routine? If your child uses an alarm clock, start setting that now and gradually work into the time he or she will have to wake for school. If you are your child’s alarm clock, do the same thing and start waking him or her up earlier about a week before school starts so day one isn’t made more difficult by a sleepy student. Continue reading →